About me

We're sailing Born in Oslo, Norway in 72.

Got sick as baby, was given some ototoxic antibiotics which took most of my hearing (at least 80%). What was left was mostly in the deep frequencies and a little in the highest end.

That was enough for me to learn to speak and communicate. I recently took a test called the IOWA-test, which told me that I lipread about 50 % of normal speak. The lipreading is a crucial support to the little residue I have left of hearing capability. The hearing aids increase the sound, but that helps only if there’s something left to receive the sound…

The way my brain works to process verbal communication; is that without the lipreading I don’t get much from the sound, and without the sound I don’t get much from the lipreading. I need both, they supplement each other. The higher frequencies are completely gone. I guess it’s due to normal reduction in hearing, but because I had so little to go on, nothing useable is left.

I have been integrated in the hearing community all my life, thanks to my environment, selfdetermination and family.

In mid 2006 I had a breakdown and slowly discovered that I no longer can work as I used to.

Entering 2007 I just started “the long walk” towards getting two operations that can restore my hearing to higher levels than before. Instead of being a deaf man functioning poorly in the hearing world, being a burden for others, I want to be a resource.

In this blog I will attempt to write about issues that come up along the way. I realize that I have been through a lot in my life (related to the hearing), and that I have a lot more in store. In order to cope with this, I want and need to write about it.

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9 Responses to “About me”

  1. John Toolan Says:

    Ulf,
    I am a photo editor at Conde Nast Portfolio. I am working on a story that involves brain imagery. I found that really cool x-ray shot of the human skull and brain on your website (the one next to Homer Simpson’s x-ray). Can you tell me where you found it? I am trying to track down the person who created it. Thanks a lot.

    John

  2. Ulf Says:

    I might be mistaken, because I honestly don’t remember, but googled it for filename (I didn’t change it).
    http://www.cs4fn.org/biology/basalganglia.php
    Think this is my source…

  3. www.cottoncandycloud.wordpress.com Says:

    Ulf:

    I translate from Norwegian to English

    and from English to Norwegian.

    I translate mostly by using the context

    of the sentence.

    Your translations from Norwegian to

    English are nearly perfect. Impressive.

    I am jealous. 🙂

    I am still listening, Ulf!

    Sandy S. Zoo

    http://www.cottoncandycloud.wordpress.com

  4. Steve Says:

    How close are you to getting your Cochlear implant? Are you on the list.

    Steve

  5. Alexandra Snyder Says:

    My name is Alexandra Snyder; I am the Content Editor at HealthCare.com. I’ve been reading your blog, CI4me2007, and was really impressed by the content. I would like to invite you to feed your blog to our blog community.

    We have a growing community of bloggers, health care seekers and care providers, and are one of the top online health destinations in the U.S. We currently receive millions of visitors each month! By feeding your blog to our site you will expose your posts and work to the millions of users in our network since each post is featured on our homepage. This is a great way to increase traffic for your existing blog or website and gain notoriety.

    Best of all, it’s simple, no need to write a separate blog or leave your current blog site. You would simply create an account at http://blogs.healthcare.com and feed your content. Please feel free to contact me if you need help setting up your blog feed, I will be glad to help you.

    Have a great day!

  6. Amy Henderson Brown Says:

    Hi Ulf:

    Please email to me (abrown@letthemhear.org) your request for additional peer reviewed medical literature in support of bilateral cochlear implantation, and I will send the information to you. I understand you already have some information from our site for the year ending 2006, but there is more information available.

    I welcome your questions.

    Best regards,
    Amy
    Director
    Let Them Hear Foundation
    Advocacy Program

  7. Holly Says:

    I randomly came across your blog here while searching for some health related information and I just wanted to say hi, leave a comment to let you know that your words inspired me and that you have a hope filled face. I have often wondered how certain challenges would affect me, but then I laugh and remember that I in fact affect my challenges.

    “I want to be a resource…” You already are, just as you are, and people reading your words are inspired to affect their own unique challenges through the determination seen in others. Thanks for sharing with the world.

  8. Dr Efrat Schorr Says:

    Dear Ulf,
    Thanks for the frank and honest observations on your blog. I appreciated your perspective on cochlear implants.

    I wanted to let you know about my website HearingFamilies.com. Please spread the word!

    Thank you
    Dr Efrat Schorr


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