Christmas 2008 – 36 months in waiting

As the end of 2008 nears, I have this summary for the year.

Still waiting for the CI. Still have no date. Still on the brink of deafness. Still struggling in everyday communication situations.

Despite this, life is pretty good. I’m extremely grateful to live in a country like Norway, where I’m provided for. I’m not happy about the waiting part, of course. But I’m able to pay my bills and buy presents for my loved ones and even take a trip to my friend in Norwich, UK for the Christmas and New Years Eve!

Personal life is really good with a new, promising and really exciting relationship. This awesome woman might be "the one"! So I’m very, very happy about that and look forward to the next year for that reason alone. I miss her achingly bad right now, but this trip to UK was planned even before I met her, and we both have "family circumstances" that requires us to take things slow and spend this holiday apart…  😦

Health wise, I’ve regressed somewhat, but that is because I feel some strength returning, and have an urge for getting back up and on with my life… Neck and shoulders are troubling me. I started swimming again, but evidently the body isn’t quite there yet.

But I keep telling myself; take it easy, don’t exhaust yourself again… It’s not easy to take it easy for me, but I’ve become better at knowing when I’m tired and need a break. Still working on that issue I guess.

Had a round of pneumonia and a couple of common colds so far this winter.  That is not normal for me, but then again, "everybody" has been sick this year… That stopped my training for a few weeks. I’m looking into why the neck and shoulders are hurting as they are. Buying new pillows, trying out some dietary supplements for joints and muscles for people who are exercising… It doesn’t seem like the training itself is the cause, because the pain is still there after a few weeks of no training…

My guess it’s the stress from trying to keep up with conversations and common verbal communication. (you know; protruding my head, in order t signal that I have trouble hearing you, or signaling that I didn’t hear you. It’s just that mimic habit that is hard to stop. It affects my whole body posture… Head forward, shoulders slumping forward, upper body bent forward, looking into the ground… I arrest myself, but when I get tired, it’s back again…)

And now the flu is on it’s rise, newspapers in Norway report…  Ah, bring it on, and let’s get it over! It’s good for one thing; to keep the immune system on it’s toes and in tip top shape, isn’t it?

When I return to Norway, I will investigate in how much longer I have to wait for the CI-operation.

I have a few things going on in that regard. Will report on it here on my blog when something real happens.

It seems like 2009 will be the year I get my first CI. Can’t be more specific yet…

So, to all my readers:

HAPPY NEW YEAR!

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Posted in deaf, love. 3 Comments »

A good analogy of HA, unilateral CI and bilateral CI for hearing people

The following words was observed on Facebook (written by my fellow CI-bloggers) this morning.

A CI blog-friend of mine, Valerie, asked for advice on Facebook:

“Our school will have visitors out next week, how do I explain my cochlear implants and deafness without them treating me differently????

Then another CI blog-friend of mine, “the mad dasher”, Sam Spritzer, offered Valerie a very good answer, and I feel compelled to share this with my readers:

Sam Spritzer at 1:17am December 5

If I were you, I wouldn’t even worry about them treating you differently. You can tell them that CIs are the 21st century version of HAs, only better. And if you have to use an analogy, CIs to HAs are like color tv to b&w tvs. And a bi-lateral CIer is HDTV to standard color tv. Good luck!”

This was the best analogy I have seen to date, in order to explain hearing technology to hearing people. Also he is right in saying not to worry about being treated differently. It’s easy to say, of course, but there’s truth in it. I can vouch for that… Think about something else. Avoid or avert those “worry” thoughts…

So, I just want to rewrite the analogy a little bit:

Imagine hearing aids are like Black&White TV. Then CI is like color TV.

If unilateral CI is like color TV, then bilateral CI is like HDTV.

In the Queue of my life, no 44 – (Part 5 of 7)

Secretary of State Sundsbø: – The responsibility lies on Health South-East .

Secretary of State, Dagfinn Sundsbø (SP, Centrum Party) in the Department for Health and Care says to Din Hørsel taht the department have been briefed about the situation for CI-surgeries in the region of Health South-East. – There has been concerns for the difficult situation at Rikshospitalet. We’ve been informed that illness among staff has been a large contributor to the currently difficult situation. But we strongly believe Rikshospitalet will be able to turn this around and that they are doing whatever is possible in order to maintain the set number of CI-surgeries for 2008.

He tells us that the development of the situation are closely monitored via follow-up meeting throughout the fall of 2008. – Health South-East has a clear understanding and acceptance of the demand set by the department as for how many surgeries shall be performed this year, he says.

According to the State Secretary, the Rikshospitalet are working at a project for increasing the surgery capacity by means of eliminating the needs for putting CI-patients into beds post-procedurally. – That project has a high priority and is expected to be implemented some time in October. The Otolaryngology department has drafted a plan for treating more patients. The plan is being finalized and is currently being studied by the hospital management, he says.

Sundsbø says that the reason of the unfortunate situation that has unveiled, is caused by a number of unfortunate coincidences. The Otolaryngology section had a heavy burden of illness, and also had trouble recruiting new staff for compensation. Reduced number of beds available to the section will be compensated by the establishment of the “one-day treatment” project, he says to Din Hørsel. – We’ve also been informed that another problem area is the pre-qualifying CI-examination capacity, Sundsbø tells.

108 patients are currently waiting for CI at Rikshospitalet. [my comment: at current rate the 108th patient has to wait more than 2 years]