CI-nagging round 2 (actually it’s more like round 5 or 6)

OK, the health care bureaucracy in Norway is fucked up in many ways. I have to live with that, and I have to deal with it.

SO, the premier hospital in Norway, Rikshospitalet, did not reply for my 5 or 6 first e-mails. Now finally I got a name and an e-mail-address that I can “hammer”. Maybe I will get some more info soon. Nevertheless Rikshospitalet have many who needs CI-operations on their waiting list. This results in a long waiting time, up to 3 years. This is a seriously long time for me at the moment. The perspective is unbearable. I don’t even want to start thinking about what I have to fight in order to get the second CI-operation.

Then I talked to a lawyer at HLF who works with these issues in order to put pressure on the funding  governments. She informed me that another hospital in Norway have a waiting time of “only” one year. This is Haukeland in Bergen.

So, I’m thinking, well, I have more than enough time, so why not give it a try, see what comes out of it.

The procedure then is that I have to go back to my personal physician, ask for a new requisition to a specialist at a hospital where I live (AHUS), and then get yet another requisition at AHUS to the CI-operation itself at Haukeland Hospital. Then I have to wait for Haukeland to reply to me and so forth.

Sidenote: All this Kafka-like bureaucratic back and forth drives me nuts! All that wasted manpower, resources and time! Jeez! Rikshospitalet has a HUGE file with my name on since I’ve been a patient there since childhood. They KNOW how bad my hearing is, they KNOW the pretext of my condition. Yet the system needs all this paperwork, these other specialist to say that, yes, your condition qualifies for a CI-operation etc. etc. This is one aspect of what is wrong with the Norwegian health care system. It is way too bureaucratic and complex. It has become a “bureaucracy-for-bureaucracy’s-sake-institution”.

AHUS (Akershus Universitets Sykehus) managed to loose my first requisition to the specialist in order to get the first requisition to Rikshospitalet. After my nagging they “found it at the bottom of the pile of requisition applications”.

AHUS then managed to loose my second requisition to the specialist in order to get a new requisition to Haukeland. I had to get my personal physician to re-send it. (and they always use a messenger who deliver it personally to the staff at the right department at AHUS!!!)

(why do they need to do another examination of me to give me an exact replica of the first requisition only to another hospital???)

Haukeland hospital has answered every one of my e-mails and in that aspect they appeal to me. But for me ultimately the technology and the medical skills is the most important. I don’t want my hearing to be fucked with by a newbie. It’s too important to me to be blatant about who does it and what CI-device I end up with….

I have fears that me playing on two horses; namely Rikshospitalet and Haukeland might give me troubles later on. In Norway we have a right to choose hospital, but I don’t know if they are collaborating the waiting list at the two hospitals….. And what would happen if….. and so on… I can go mad going down that road…..

A long posting… sorry about that, but this one was long overdue, I had a lot of catching up to do concerning this aspect of my life…..

I’ll stop now 🙂

This was supposed to be me :-)

Yesterday I discovered this interesting book while shopping on Amazon.com: “Rebuilt” written by Michael Chorost.

It was a weird feeling as I discovered more and more about the man and the book. He went and did exactly what I had in mind 🙂  Writing about Cochlea Implants in himself and what it did to him (mind you, I haven’t read his book yet, I just ordered it).

Well, after the TINY disappointment of having my idea stolen, I just felt great enthusiasm. This is GREAT! And his website is fun to read too, not all is about Cochlea Implants; he ODs on a single pot cookie on the Burning Man festival as well 😉

http://www.michaelchorost.com/

I want to spread the word about the book, I really think the world needs literature about CI and attention around the whole subject…  Visit his website!!!

All senses alert

Lately I’ve been plagued with tension-headaches and extreme fatigue. The headaches I cannot pin down to one cause, same goes for the fatigue-episodes. It seems like all my senses are so alert that it’s on the verge of being hypersensitive…

That goes for mye hearing too….  I’ve had to stop listening to music, alltogether. Only a short time of music gives me headaches. And I turn off the hearing-aids as much as I can…

I will monitor my eyesight much more often and I will start to use contact lenses in the hope that it will lessen the strain on my eyes… It’s obviously very important for me to eliminate any cause for unneeded strain on my senses, since the fading hearing clearly does something to me.

I’ll report first impressions after contact lenses has been used for a few days.