Becoming Deaf in Norway 2007

I’m going deaf, what that does to me, my thoughts and my life.

R.I.P Sten Harris

Posted by Ulf on May 9, 2008

HARRIS2404_jpg_392265a Sten Harris died yesterday, after a long time of illness. Sten worked at Rikshospitalet for many years, operating most of the CI-operations up until now. He was a true CI-pioneer in Norway.

His illness and following death is probably one of the reasons that Rikshospitalet has problems with the capacity of performing CI-operations these days. Add that to the budgetary cuts made recently, and it is not difficult to understand that it will be hard to find a replacement.

Sten Harris last act as the leading medical surgeon at the Otolaryngology-departement at Rikshospitalet was to object to the severe budget cut by resigning from his position in protest.

He also appears in the news-video where I also appeared (video is posted permanently on the top left side of this blog).

He has also through the years been an advocate for bilateral-CI and other operations that helped many people to a better life. He participated in debates to the last (art.), and was involved in crucial research over the years, thus driving the development and understanding of CI and related subjects forward: “Researchers Ona Boe Wie and Sten Harris from the University of Oslo presented findings on the effect of bilateral cochlear implantation on spoken language skills in children from five months to 18 months old.”.

I did not get to meet him, but from what I’m told, he was a fantastic person. And I googled him and found numerous examples of his dedication to the cause of hearing/deafness.

Sten Harris, you will be remembered by many, many people. This is my post-mortem salute to you.

May you Rest In Peace

Posted in cochlear implant, norway | No Comments »

Just say yes to sunshine

Posted by Ulf on May 8, 2008

Today I want to spread some sunshine.

This picture shows the morning sun entering the valley of Lærdal in one of the deepest parts of the worlds longest fiord; the fiord of Sogne (Sognefjorden). The fiord goes almost halfway into Norway.

This is my view from the window as I write, and this is the view I enjoy every day I’m visiting my girlfriend. It’s uplifting, allright :-)

Lately I realized that I have been indulging myself in self-pity too much for my own taste. It’s time to turn the other cheek and greet the spring and summer with a new fresh, happy spirit. Bad news on the CI-front will eventually have to be replaced with good news again.

So, my dear readers, please enjoy the view of Norwegian mountains with rapidly melting snow on the tops. Today I will walk in the bright sunshine, take pictures like crazy, and if they’re good, possibly share them here with y’all…

Have a nice sunny day!

Quote of the day:
There is no greater impotence in all the world like knowing you are right and that the wave of the world is wrong, yet the wave crashes upon you. - Norman Mailer

Posted in life, mountain, photo, snow | 3 Comments »

Audio depth perception (and pitch)

Posted by Ulf on May 2, 2008

Thanks to all friends who responded about my question of wether to fight for bilateral from the start-line or do one by one

The decision has now been made :-) I want stereo!!! I want depth perception and I want my pitch back….

Kitaoka-OutOfFocus333

This image is a good analogy of the sound-problem I have these days. Try to focus on this image for an hour or so, and then you can slightly imagine what it is like for me to concentrate on speech that is “out of focus” for my brain…

Also thanks to Michael Chorost for his (previous posts and) article in “The Journal of Life Sciences”: “Living in stereo” on the subject.

Since I’m already on the path of thanking people, I’d like to include Amy Shah for writing an article about the importance of pitch in speech comprehension: Pitch Perception and Cochlear Implants. This article illuminated a black hole in my understanding of what is happening to my sense of hearing… (My question was: I can still hear somewhat, but why has it become so difficult to understand speech? Her article explained that to me…)

Try this for testing your Pitch perception ability…

It’s all about perception…

motion_sm

Posted in bilateral, cochlear implant, understanding hearing loss | 3 Comments »

Feel like I’m walking in Sahara

Posted by Ulf on April 28, 2008

P4150494

This shot was made with my brand new Olympus 570-UZ camera (it has a built-in panorama function, as you can see). I’m very pleased with it :-)

What I’m not so pleased with, is that I went to Rikshospitalet today to find out how much longer I have to wait. Last time I asked, in December 2007, I was number 60. Today I was number 57…

So… things are not going very fast there for the time being. How RH is going to operate 100 CI’s this year is a mystery to me. Especially since they managed to shorten the list with about 3 in the first 4 months of 2008.

I was having hopes that maybe something would happen this summer or this fall, but now I think it will be 2009 before I can call myself a bionic man…

Can someone build robots who can do the CI-procedure on an assembly line, please?

Posted in cochlear implant, frustration | 2 Comments »

The rings of Saturn - simultaneous bilateral CI-surgery?

Posted by Ulf on April 27, 2008

The Sahara desert, where I was recently, is like a window to the universe. P4150567I was excited to be able to see Saturn with my very own eyes through a telescope.  Fantastic! Just like the picture above.

The thought just came to me; In space there is no sound. Sound carries through air. No air in space, hence no sound.

Which brings me to this: I’ve been thinking about getting simultaneous bilateral CI-surgery, and how that would be for a few weeks… Living with absolutely no sound…

I’m sure the hospital won’t do it based on my request alone. Do I want to do it if I could? For the sake of my recovery, I want both my ears to be done with. I want to do both surgeries in one session. My only concern would be my son in the silent weeks before sound activation. I would be able to communicate though, I can read his lips pretty decent… It would just be a little slow…

I’m thinking my brain and recovery would benefit from doing both surgeries, both activations, and training both ears equally. Both my ears are very similarly damaged.

I have a feeling the hospital’s policy (for several reasons) is one ear at a time. If that’s the case, I’m pondering wether it’s worth pursuing the prospect of having both ears done simultaneously… (I risk pissing them off, you know…)

For that to be feasible, I would need help from a lawyer, which I think I have through HLF. I would have several arguments, one of them being economical. Other arguments would be the time aspect of going through two single operations that would take 1 - 2 years extra depending on the waiting time… I’m not keen on waiting anymore…

Anyone have opinions on simultaneous bilateral CI-surgeries or experienced simultaneous CI-surgery? I’d be happy to hear from you….

Posted in cochlear implant, rehabilitation | 5 Comments »

My un-sound condition - pre CI era

Posted by Ulf on April 24, 2008

I want to make this list in order to remind myself what it was like before I got the CI (2007/2008). Maybe I run into problems post-surgery post-sound activation and need a reminder of how I reacted to sounds before the operation(s). It’s a time capsule to myself…

Here’s a similar post I wrote January this year…

These are the sounds that causes great stress, fatigue, even pain and vertigo in me these days… 
  • All things mechanical like car engines, especially bigger engines like on buses and trucks.
  • to many voices at the same time, especially if a little loud
  • the clanking sound of ceramics against ceramics (dinner plates)
  • my son at the top of his voice (vertigo)
  • my mothers voice when louder
  • children voices
  • the vibration sounds from my computer, or maybe it’s one of the fans
  • inside my car
  • elevator music and “muzak” (because it’s too faint for me to grasp, or too noisy otherwise, my brain tries too hard)
  • the hiss from the steamer on a cappuccino-machine
  • if everything else is quiet, the refrigerator noise is picked up by my HA and that sound wears me down
  • the air-condition in office buildings and alike
  • stiletto-heels and other hard shoe soles on hard surfaces
  • vacuum-cleaner and other domestic appliances
  • music     :-(
  • any sounds in a room with bad acoustics (naked floors, walls and ceiling echoing sounds)
  • any background sound when I’m having a conversation
These are the sounds I can’t hear at all anymore even with hearing aids on
  • Birds singing (could hear them faintly as a kid)
  • My cat meowing
  • My bedside alarm clock
  • the fire alarm
  • the doorbell
  • running water
  • rain falling on rooftop
  • someone yelling my name from a distance or another room

Posted in cochlear implant, condition, deaf, fatigue, self-therapy, understanding hearing loss, vertigo | 3 Comments »

Pharaohs and Red Sea impressions

Posted by Ulf on April 19, 2008

In order to justify this posting on this blog, I would like to say that anyone on the brink of deafness who suffers conditions like hyperacusia, tinnitus and/or extreme fatigue would probably benefit from an exotic trip.

It will help for thinking about other things than “the condition”.
I can testify that I feel somewhat better, I needed the sun and warmth after a long and rather dark winter.

Here’s a few more impressions from my trip to Egypt last week…

Online Showcase

As I’m just testing the most convenient way of sharing pictures without giving my friends any hassle, this display only contains a limited selection of the pictures I took during the trip…

Posted in self-therapy | 2 Comments »

As life goes on… A post-mortem salute.

Posted by Ulf on April 18, 2008

A person I liked extremely well for her incredible kindness and self-sacrificial nature has moved on to the next world…

Ingrid-Line Hernholm, mother of 5, passed away peacefully on April 14th after she had been in coma since suffering a brain hemorrhage on April 1st. She suffered the brain stroke while working for Norwegian Association for Hard of Hearing.

  ingrid-line_rip  

Ingrid-Line, all of us who had the joy of knowing you and your soft gentle voice, mourn your passing. May you rest in peace!

Hvis jeg kunne leve mitt liv om igjen

Jeg ville våge å ta mer feil. 
Jeg ville slappe mer av. Være mer smidig 
Jeg ville være mer enfoldig 
Jeg ville ta færre ting alvorlig 
Jeg ville ta flere sjanser, jeg ville ha flere opplevelser 
Jeg ville  bestige flere tinder og svømme over flere floder 
Jeg ville spise mere is og færre bønner 
Jeg ville kanskje få flere vanskeligheter, men færre innbilte.

Ser du, jeg er en av dem som lever følsomt og sunt. 
Time etter time, dag etter dag 
Å, jeg har hatt mine øyeblikk, og hvis jeg skulle leve om igjen, ville jeg ha flere av  dem.
  Faktisk ville jeg prøve å ikke ha noe annet.  Bare øyeblikk. 
Det ene etter det andre, i stedet for å leve så mange år med tanke på morgendagen. 

Jeg har vært av dem som aldri reiser noe sted uten et termometer, en varmeflaske, 
en regnfrakk og en fallskjerm. 
Hvis jeg skulle leve om igjen så ville jeg reise med mindre bagasje. 

Hvis jeg skulle leve mitt liv om igjen, ville jeg begynne å gå barføtt tidligere om våren,
og fortsette lengre utover høsten. 
Jeg ville danse mer 
Jeg ville unne meg selv flere karusellturer 
Jeg ville plukke flere tusenfryd 

Nadine Starr, 85 år

If I could live my life again

In the next one I would dare to make more mistakes.
I would not try to be so perfect, I would relax more.
I would be sillier than I have been, in fact, I would take very few things seriously.
I would be less hygienic.
I would take more risks, make more trips, contemplate more sunsets, climb more mountains, swim more rivers.
I would go to more places I have never been to,
I would eat more ice creams and less cereals.
I would have more real problems and less imaginary ones.

I have been one of those persons who lived each minute of his life with judgement and in a prolific way; of course I had happy moments.
But if I could go back, I would try to only have good moments.
For if you don’t know, that is what life is made of, only of moments; do not miss the now.

I was one of those who never went anywhere without a thermometer, a bag of hot water, an umbrella and a parachute;
if I could live again, I would travel lighter.

If I would live my life again, I would begin by walking barefoot earlier in spring,
and continue longer into the fall.
I would dance more
I would give myself more joyrides on a carousel
I would pick many more daisies…

   

 

Letter from her colleagues

Kjære sentralstyremedlem, fylkesleder og utvalgsleder i HLF.

Det er med stor sorg at vi må meddele at vår avholdte kollega Ingrid-Line Bruland Hernholm er gått bort. Ingrid-Line ble rammet av et hjerneslag mens hun var på jobb tirsdag 1. april. Ambulanse var raskt på plass, og Ingrid-Line ble brakt til sykehus. Vi hadde et sterkt håp om at hun skulle stå det igjennom. Men mandag 14. april var dessverre håpet ute, og hun sovnet stille inn.

Vi vet at mange satte stor pris på Ingrid-Line. Hun gjorde i mange år en stor innsats som tillitsvalgt i HLF. I fjor begynte hun i HLFs administrasjon og har gjort en strålende jobb i arbeidet overfor våre likemenn. Ingrid-Line var en kollega vi raskt ble glade i. Hun hadde mange venner i alle lag av HLF, og hun vil bli sterkt savnet av oss alle.

Våre tanker går til Ingrid-Lines familie. Vi tenker også på dere som hadde lært Ingrid-Line å kjenne. Mange har mistet en god venn og en avholdt kollega. Vi står sammen i sorgen over tapet av Ingrid-Line.

Dersom du føler du trenger å snakke med oss i forbindelse med Ingrid-Lines bortgang, er du selvsagt velkommen til å ringe.

En god hilsen fra
Geir Lippestad (generalsekretær HLF) ,
og Steinar Antonsen (organisasjonssjef),

Posted in hearing | 2 Comments »

My letter to the Norwegian Treasury Department

Posted by Ulf on April 4, 2008

The text has been translated and changed some, compared to the original letter in Norwegian.

My status and reason for writing this letter:

I have been hard of hearing all my life, and at the same time I have been working like everybody else at 100% in the IT-industry for as long as I could. Never learned sign-language. I am now deaf and I am not able to work. I wait for a bilateral CI-operation.

My general health is very much influenced by tinnitus and hyperacusis. It means I can’t stand certain sounds or loud sound. This phenomenon is examined closer in the article ”Recruitment”.

There are significant mental health aspects to my condition too, and that also affects everybody close to me.

It has been a several year long process to acknowledge the fact that I am now deaf. In this process I have made many experiences with “including work life” (aka link to NAV about IA (norwegian), follow this link for more information in English.), NAV and the healthcare system. Some positive, of course…

Where I am today

Despite a strong inner will, and a desire to be part of the working life I am hindered by the fact that I have to wait for the CI-operations that can give back my ability to function in everyday life again. I have IT-skills that are extremely sought for in the IT-industry today. I would be hired “on-the-spot” by one of the largest telecom-companies in the world; Telenor, to work with projects in the top management group for the Norwegian Business Division. It is a frustrating place to be right now, waiting for those CI’s.

My main point:

We have a serious socioeconomic flaw in our bureaucratic systems in Norway in 2008. Work disabled individuals like me, do not get adequate medical treatment that ensures our society continued productivity from same individual. I use myself as an example:

Read the rest of this entry »

Posted in bad bureaucracy, cochlear implant, deaf, deafness, norway, political | 2 Comments »

Minister of Health in Norway guarantees CI-operations for 2008

Posted by Ulf on April 1, 2008

This is a translated, abridged and reworked version of a Norwegian article found on HLF’s website.

Guarantees CI-operations and screening of infants.

Brustad-webby Norwegian Minister of Health, Sylvia Brustad gurantees that screening of hearing on infants and CI-operations will be carried out, regardless of the cutbacks at Rikshopitalet.

In response to MP Berit Brørby (Labour Party) the Minister of Health guarantees that the operations and screening will be carried out according to the assignments the government has given Rikshospitalet. The fate of the Otolaryngology-department at Rikshospitalet has been uncertain for some time now, and the hospital was ready to implement huge and devastating cuts to the said department in February this year. Now, however, the Norwegian Department for Health and Care and Health South-East (Rikshospitalets superior administrative body) agrees in their demands to the Rikshospitalet.

Priority on Hearing-operations

“I can ensure the representative Berit Brørby that the demands set in the assigments for Rikshopitalet stands from my side. There are also no changes in the function Rikshopitalet has in this area nationwide in regards to operating and following up on children. Health South-East has now also reassured the government that the given assignments will be prioritized independent from the demands for meeting the budget for 2008.”

“The Health department has also repeated a precision to Health South-East that the goal for 100 CI-operations for adults is per definition for new patients”, writes the Minister of Health in her response to representative Brørby.

The Minister has since the summer of 2006 said that the total number of nationwide CI-operations on new adult patients shall be escalated up to the medically and statistically founded annual estimate of 200.

The waiting time for CI-operations for adults is now between three to four years.

The Minister also wrote about the all-important screening process of infants in order to start early with children with suspected hearing damage. (not directly related to the CI-issue, but nevertheless good news for the development of creating a good medical service to all things related to hearing).

My comment:

In short this means that despite the hard times for Rikshospitalet budget-wise, the CI-operations are now guaranteed. The hospital will have to find other ways to save money than to bleed the Otolaryngology-department to near-death… Good news indeed :-)

Posted in bad bureaucracy, cochlear implant, information, medical, norway | 2 Comments »

My hearing diagrams

Posted by Ulf on March 27, 2008

Finally got myself around to scan these charts and post them here :-D

First of all, here is a source of terminology and technical explanations related to sound.

From 2004:

hearing diagram 2004_fixed

The yellow “banana” is the speech discrimation area for normal hearing. Deafness is defined as below 85 dB. The measurement stops at 100 dB. On this measurement I was intent on doing the best I could, so I probably cheated by looking at signs in the face of the lady doing the test, through the looking glass from the booth I sat in…. Another problem is phantom sounds or echoes that appear from the test itself. Did I hear it or not? Was it a phantom sound or a real test sound? I have taken this test so many times that I quickly get the rythm of sounds from the audiologist and know when the sounds go up and down… I know their testing regime instinctively… Sad thing it only hurt myself when I cheated on the tests, the hearing aids were adjusted based on these results…

From 2006, 2 years later:

 

hearing diagram 2006_fixed

A noticeable drop in the 125 to 500 Hz-area (the deepest bass sound frequencies). This is the last test I took before commencing the long road to a CI in Norway. There is no doubt, the hearing is declining and I am clinically deaf, and have been for some time….

I also took a speech comprehension test (bottom chart on the 2006 diagram) and I think I scored 0%… What I heard I could only take a wild guess on….

What’s next?

Not before long I will post an abridged translation of a letter that I have sent to the Norwegian Treasury Department (Finansdepartementet). This is something I have been working on for some time now, in the wake of the budget cuts at the premier hospital i Norway; Rikshospitalet (ref. last postings regarding my interview on national tv etc). This work was also the reason why I needed “time” off from my blog (good thing the Easter came in the middle of this). Stay tuned friends!

Posted in comprehension, condition, deaf, deafness, postlinguistic deaf, understanding hearing loss | 2 Comments »

The cost of a CI-operation?

Posted by Ulf on March 14, 2008

Can anyone tell me the cost of a CI-operation? Either for one ear, or simultaneously both ears?

I would like to “hear” (pun intended ;-) ) from everyone who has knowledge about it…

On a personal note…

My writing is a bit slow these days, I hit a mental bump in the road caused by these budget cuts I was interviewed about

I’m sleepless in Oslo again, and thought it would be a nice opportunity for letting the world know I’m still here…. And finally browse through some old photos of mine…. Time to air them :-)

Easter holiday is just around the corner, and I intend to spend my time at our Swedish farm by the lake to get my inner strength back. I will hopefully complete a restoration of a sturdy American built Mercury outboard-engine that has been broken and lying around for years.
Also I will take up a new hobby; kayaking! And with that another too long ignored interest of mine will be much more interesting: photography…

I imagine a lot of photo-opportunities just waits there for me to capture… Have plans to take it up again… Hope to show some of them off here on my blog in near future! These two were taken last year with my Nokia cell-phone, imagine what I could do with a proper camera….

And good wishes (and a little jealousy  ;-)   ) goes to these recently CI-activated blogger’s! Pay them a visit and leave a happy Easter note and let them know we’re CI-happy for them! Some of them has posted their activation videos, check it out!

Sam the brave-blade-Runner, Steve the Ruminator, Michael “ReBuilt” Chorost, Abbie “Contradica”, Jennifer “the butterfly” and Jeff “metalhead”.

 

With this last picture I took last year around Easter time I bid thee good night and I wish all my readers a happy Easter holiday!

Posted in cochlear implant, condition, deaf, kayak, life, photo, picture, self-therapy, sky, sweden | 6 Comments »

US troops loose hearing in Iraq

Posted by Ulf on March 8, 2008

This should hardly have to be news, but good thing anyway. Increased attention to hearing damage by the US military.

As reported by Associated Press today:

http://www.federalnewsradio.com/?nid=80&sid=1359930

Based on a report written by Theresa Schultz from NHCA. She is a former Air Force audiologist.

Here is another article based on her work from 2004.

Posted in hearing | No Comments »

Find new subtitles in a whiff!

Posted by Ulf on March 5, 2008

Open Source Project for finding subtitles

When TV-networks doesn’t caption their popular shows, deaf and people with reduced hearing are discriminated. On the Internet and by the use of home computers, there is a way around this. Most of the activity related to this is by copyright laws and such, regarded as illegal in various countries. I will not explain any of this (or encourage to break any laws), there is plenty of knowledge to find on Google on those subjects. Here’s a good starting point, though…

What I intend to do with this article is to let my readers know about this Open Source Project for making a program where subtitles to movies and TV-series can be found without having to resort to various subtitle search-engines… (here’s the definition of Open Source in case you’re wondering)

There are a lot of people around the world who simply do their own captioning of various shows, by way of subtitle editor software (there are many kinds of such software). Their work are spread via various Internet subtitle-sites, to the enjoyment of people like myself. These subtitle files now have a new way of distribution, thanks to the project I’m writing about here.

subdownloader_banner

The program is called SubDownloader and I have tried it for some time, and I feel more people should know about it…

Read the rest of this entry »

Posted in caption, captioning, deaf, hard of hearing, information, subtitles, video | 1 Comment »

Norwegian translation "Recruitment": Om fenomenet rekruttering

Posted by Ulf on March 4, 2008

Here’s my original posting on this subject.

Artikkel av Dr. Neil:
Forklaring av “recruitment” ifbm hørselsnedsettelse

© Juni 2001 by Neil Bauman, Ph.D.
Norsk oversettelse: Stein Thomassen, www.tinnitus-tips.no
Link til originalen: www.hearinglosshelp.com/articles/recruitment.htm
Du kan kontakte Dr. Neil på neil@hearinglosshelp.com

Spørsmål: Enkelte mennesker kan ikke bruke høreapparater fordi de har alvorlig “recruitment”. Recruitment er et veldig merkelig navn på dette problemet. Ordet betyr å “verve” eller “rekruttere” Ordboken sier ingenting om hørselsproblemer og høreapparater. Hva er egentlig recruitment og hvor kommer det merkelige navnet fra? - C. H.

Svar: Godt spørsmål. Ikke rart du er forvirret! Selv mange helsearbeidere innen hørsel forstår ikke denne tilstanden som har dette merkelige navnet recruitment. Det er mange misforståelser rundt recruitment. Men faktisk er recruitment et godt ord for å beskrive dette fenomenet – så snart vi forstår hva som skjer i vårt indre øre.

Hva er recruitment?

Veldig forenklet kan man si at recruitment er når lyder oppleves å bli for sterke for fort.
Før vi ser på hvordan recruitment fikk navnet sitt, er det to ting vi må vite om recruitment.
For de første: Recruitment er alltid en bivirkning av et sensorinevralt hørselstap (tap pga ødelagte hårceller i det indre øret). Hvis du ikke har et sensorinevralt hørselstap, kan du ikke ha recruitment.

For de andre: Det finnes to andre fenomener som ofte sammenblandes med recruitment. Det er hyperakusis (overfølsomhet for normale lyder) og fonofobi (frykt for normale lyder, og etter hvert overfølsomhet for dem). Både hyperacksis and fonofobi kan opptre enten du har normal hørsel eller er hørselshemmet. Dersom du har sensorinevralt hørselstap, kan du faktisk lide av alle tre tilstandene på samme tid!

Hvordan recruitment fikk sitt navn
La oss nå ta en titt hvordan recruitment “fungerer” og hvordan det fikk sitt navn. Den kanskje letteste måten å forstå recruitment er å sammenligne tangentene på et piano med hårcellene som sitter i sneglehuset i det indre øret.

Pianoet har en rekke hvite tangenter, mens det indre øret vårt inneholder tusenvis av “hårceller.” Tenk på hver hårcelle som om den var en hvit tangent på et piano.
Piano-tangentene er inndelt i mange oktaver. Hver oktav bestå

r av 7 hvite tangenter. På samme måte kan du forestille deg hårcellene i vårt indre øre gruppert som mange “kritiske grupper” hvor hver kritisk gruppe består av et bestemt antall hårceller. Hver kritiske gruppe tilsvarer på denne måten en oktav på pianoet.
Akkurat slik som hver piano-tangent tilhører en eller annen oktav, tilhører hver hårcelle en eller annen kritisk gruppe.

Når du spiller en akkord på pianoet, trykker du ned to eller flere tangenter samtidig, men de sender bare ett lydsignal til hjernen din. På samme måte (men likevel annerledes) er det når en hårcelle som tilhører en bestemt kritisk gruppe, blir stimulert av en lyd. Hele den kritiske gruppen sender et lydsignal til hjernen vår, som vi “hører” som én lyd med den tonehøyden som den kritiske gruppen er følsom for. Slik fungere det når man hører normalt.

Når man har et sensorinevralt hørselstap, er det imidlertid slik at noen av hårcellene har dødd eller sluttet å fungere. Når dette skjer, vil hver “kritisk gruppe” ikke lenger være fullt “bemannet” med hårceller. Dette tilsvarer et piano hvor noen av de hvite tangentene er fjernet. Resultatet blir at noen oktaver ikke har 7 tangenter lenger.
Hjernen vår er slett ikke glad for en slik situasjon. Den forutsetter at hver kritiske gruppe har en full rekke av hårceller. På samme måte som en forening som mangler medlemmer, må verve eller rekruttere nye medlemmer, må hjernen vår også starte er rekrutterings-kampanje. Men siden alle hårcellene allerede er opptatt, finnes det ingen ledige å rekruttere.

Det hjernen da gjør, er ganske smart. Den rekrutterer helt enkelt noen hårceller fra de kritiske gruppene som ligger ved siden av. (Nå forstår vi det merkelige navnet.) Disse hårcellene må nå utføre dobbelt arbeid eller verre. De tilhører fremdeles sin opprinnelige kritiske gruppe, men er i tillegg også blitt medlem av en eller flere andre kritiske grupper.

Hvis bare noen få hårceller dør, så vil nabo-hårcellene lett takle dobbelt-jobbingen. Hvis mange eller de fleste hårcellene har dødd, vil hjernen likevel forsøke å rekruttere nok til at hver kritiske gruppe får en full rekke av hårceller. Dermed kan gjenlevende hårceller bli rekrutteret til å jobbe for mange kritiske grupper.

Virkningen av recruitment
Denne rekrutteringen forårsaker to grunnleggende problemer.
Det ene er at lyder som når fram til hjernen, later til å være mye kraftigere enn normalt. Årsaken er at de rekrutterte hårcellene fremdeles jobber i sin opprinnelige kritiske gruppe i tillegg til at de gjør tjeneste for andre nærliggende kritiske grupper.

Husk at når en hårcelle i et kritisk gruppe blir stimulert, sender hele den kritiske gruppen et signal til hjernen vår. Så den opprinnelige kritiske gruppen sender en ladning lyd til hjernen vår, og samtidig (siden de samme hårcellene nå er rekruttert til og jobbe for en nærliggende kritisk gruppe) stimuleres den nærliggende kritiske gruppen også. Derfor blir enda en ladning lyd sendt til hjernen vår. Dette fører til at vi opplever lyden som dobbelt så kraftig som normalt.
Hvis hørselstapet vårt er betydelig, kan en gitt hårcelle bli rekruttert til å jobbe for flere kritiske grupper samtidig. Følgelig kunne ørene våre sende f.eks. 8 ladninger lyd til hjernen vår, og vi ville da oppleve den resulterende lyden som 8 ganger kraftigere enn normalt. Du kan lett forstå hvordan lyder kan bli smertelig høye veldig raskt! Nå er det vi klager over vår “recruitment”.

Hvis du har alvorlig recruitment, er det faktisk slik at når en lyd blir høy nok til at du kan høre den, er den allerede så høy at du knapt kan utstå den.

Det andre problemet forbundet med recruitment er “uklar” hørsel. Siden hver kritiske gruppe sender et signal med den tonehøyden denne kritiske gruppen er spesialist på, er det slik at når hårcellene blir rekruttert til å jobbe for nærliggende grupper, stimuleres hver kritisk gruppe de er medlem av til å sende sine signaler også. Dette medfører at i stedet for å høre kun én tonehøyde på en gitt lyd, vil hjernen nå motta f.eks. 8 signaler samtidig – med 8 forskjellige tonehøyder.
Virkningen er at vi nå ofte ikke kan skille mellom ord som ligner på hverandre. Alle høres svært like ut for oss. Vi er ikke sikre på om det ble sagt “løpe” eller “kjøpe”. Eller var det “søte,” eller “bløte”, eller “øke”, eller noe lignende? Med andre ord har vi problemer med “tale-diskriminering” (skille lignende ord fra hverandre) i tillegg til problemer med lydstyrken. Dersom vår recruitment er betydelig, vil vår evne til tale-diskriminering sannsynligvis være sterkt redusert.
Litt forenklet kan man si at alt vi kan høre er enten stillhet eller kraftig støy med lite informasjon (lite forståelige ord). Tale som er kraftig nok til at vi kan høre den, blir bare en meningsløs grøt.

Dette er grunnen til at mange med kraftig recruitment ikke kan dra nytte av høreapparater. Høreapparatene forsterker alle lydene – så de gjør vondt. I tillegg kan ikke høreapparater korrigere for den dårlige tale-diskrimineringen. Vi “hører” fremdeles meningsløst babbel.
Imidlertid vil folk med lettere recruitment få mye hjelp av riktig innstilte høreapparater. De fleste moderne høreapparater har en eller annen for for komprimerings-teknikk innebygget. Når komprimeringen er korrekt innstilt i forhold til din hørsel, kan disse apparatene gjøre en forbløffende god jobb med å kompensere for dine recruitment-problemer.

© Juni 2001 by Neil Bauman, Ph.D.
Norsk oversettelse: Stein Thomassen, www.tinnitus-tips.no
Link til originalen: www.hearinglosshelp.com/articles/recruitment.htm
Du kan kontakte Dr. Neil på neil@hearinglosshelp.com

Posted in hearing | No Comments »

The end of CI-operations in Oslo, Norway? Video

Posted by Ulf on March 1, 2008

Posted in hearing | 4 Comments »

Captioned video of me on national news 27.02.2008

Posted by Ulf on March 1, 2008

Having trouble embedding Overstream into wordpress…

Pls follow this link:

http://www.overstream.net/swf/player/oplx?oid=toliustbimmh&noplay=1

Posted in association, bad bureaucracy, captioning, cochlear implant, deaf, deafness, norway, political, postlinguistic deaf, rehabilitation, video | 5 Comments »

An update about the CI-situation in Norway feb 29th 2008 (in Norwegian)

Posted by Ulf on February 29, 2008

This article is from hlf.no

Garanterte CI-operasjoner – og måtte gå

Styremøtet på Rikshospitalet torsdag ble meget dramatisk. Først garanterte direktør Åge Danielsen at Rikshospitalet vil levere CI-operasjoner til voksne og barn som bestilt i oppdragsdokumentet fra helseministeren. Så fikk han sparken.

Klokken 00.20 natt til fredag fikk administrerende direktør Åge Danielsen ved Rikshospitalet sparken av styret. Han røk for å ha holdt tilbake informasjon om byggingen av det omstridte sykehotellet på Radiumhospitalet.

For hørselshemmede var det også knyttet stor spenning til de foreslåtte kuttene ved ØNH-avdelingens CI-team. Fem stillinger var foreslått kuttet i CI-teamet i tillegg til de fem som ble vedtatt kuttet under forrige innsparingsrunde 15. januar. CI-teamet består av åtte personer. Både HLF og fagfolkene ved ØNH-avdelingen har derfor fryktet at hele CI-tilbudet ved Rikshospitalet ville bli utradert.

- En seier for døve barn og voksne

På direkte spørsmål fra styret under budsjettbehandlingen bekreftet imidlertid Danielsen at CI-operasjonene vil bli levert i henhold til oppdragsdokumentet fra helseministeren. Dette innebærer 100 voksenoperasjoner i 2008 og at landsfunksjonen for barn opprettholdes. Det reduserte måltallet fra 227 til 200 implantater vil ramme dem som trenger revisjon av implantatene.

- Denne garantien fra sykehusadminstrasjonen til styret er en seier for døve barn og voksne som trenger hørselsoperasjon, sier HLFs generalsekretær Geir Lippestad, som har engasjert seg sterkt i saken etter at de dramatiske kuttforslagene ble kjent.

- Uforsvarlig situasjon
Fortsatt er det imidlertid en meget krevende situasjon ved ØNH-avdelingen på Rikshospitalet. For to uker siden trakk avdelingens leder Bente Mortensen og nestleder Kjell Brøndbo seg fra sine stillinger i protest mot de varslede kuttene.

- Det har oppstått uforsvarlig situasjon ut fra de oppgavene vi har. Blant annet er det kritisk at antall sengeplasser er redusert fra 27 til 20 ved avdelingen, sier tidligere avdelingsleder Bente Mortensen. Hun har trukket seg som leder ved ØNH-avdelingen, som blant annet har eneansvar for pasienter med hode-/halskreft i helseregionen.

Til tross for den nå avgåtte sykehusdirektørens CI-garanti, vil det bli kraftige nedskjæringer i den såkalte ØPO-klinikken, som i tillegg til øre-nese-hals inneholder plastikk- og ortopedisk kirurgi.

Overlege Marie Bunne forteller at ØNH-avdelingen har over 900 pasienter som venter på å komme inn til utredning for kompliserte hørselsproblemer, hull på trommehinnen, kronisk betennelse på hørebenet og andre tilstander knyttet til øre og hørsel. I tillegg har avdelingen mellom 700 og 800 pasienter som enten er i systemet eller er funnet kvalifisert for operasjon. Avdelingen skal også følge opp nyfødte som blir oppdaget under hørselscreeningen på Ullevål og Asker og Bærum sykehus.

- Til tross for at sykehuset nå garanterer CI-operasjonene, står ØNH-avdelingen på Rikshospitalet overfor store utfordringer, sier Lippestad. Han lover at HLF vil følge situasjonen ved sykehuset tett i tiden fremover.

Posted in hearing | No Comments »

The health debate in Norway (it’s all about personal prestige and money, not the patients…)

Posted by Ulf on February 29, 2008

Just wrote a short piece in a comment-field about the political game that is ongoing in health-Norway right now: (sorry for not translating to english right now)

This is in response to the main article in Dagbladets online news this morning.

Alle debattinnleggene her har litt rett. Det er blitt en catch22-situasjon og nå er det et svarte-per spill som bare går ut over pasientene. Det er som Brustad sa: “dette er kompliserte saker, og det blir mer bråk.”
Tror generelt på det gode i mennesker, men at aktørene er fanget i et system som er basert på noen gamle dogmer og styringsmekanismer som ikke fungerer i møtet med den tøffe nykapitalismen!
Det må gjøres flere ting:

1. spesialisering MÅ SENTRALISERES og SATSES på! Bygg opp fagmiljøene og BESKYTT disse miljøene! (ikke kutt som de gjør med CI-teamet på RH!!!)
2. generell helse ute i distriktene må opprettholdes (bl.a. mottak og fødestuer)
3. byråkratiseringen av helse-Norge må reverseres, alt for mye henvisninger, papir-skyfling og for lite behandling…
4. Sett ned en kommisjon for å vurdere om det kan spares i administrative stillinger…
5. få legene til å gjøre legearbeid, overlat administrasjon til spesialutdannede (innen helseadministrasjon) sykepleiere med f.eks 10 års ansiennitet (en overlege kan være rådgiver til denne administrative person)
6. Helsenorge KAN IKKE DRIVES bare etter KOMMERSIELLE PRINSIPPER! Det handler om mennesker og omsorg!
7. Vi har råd til å betale oss ut av problemer, og politiske ansvarlige kan begynne å styre sykehusene mer direkte med direktiver. Feigt og umoralsk av politikerne og sykehusledelsen å skyve pasienter foran seg i dette spillet!
8. La pengene følge pasienten! Få en sammenheng mellom trygd og helse! Gi makta til pasientene!

Posted in hearing | No Comments »

I was on national news today

Posted by Ulf on February 27, 2008

Here is original video from NRK. The piece where I appear begins about 7 minutes into the news… It’s in Norwegian, of course ;-)
http://www1.nrk.no/nett-tv/klipp/342000

I’m working on the video-file, but unfortunately the overstream.net-service written about here earlier is undergoing maintenance due to high demand (!!!).
Will post video here later with English captions…

For English speakers: the story is about the management-board at the premier hospital in Norway, the Rikshospitalet, has presented a budget proposal that will lead to a removal of CI-operations here in Oslo (see the list in the video). This piece is related to the debate going on these days. There are a lot of troubles concerning the Norwegian health-care system these days, and now the health minister, Sylvia Brustad has said that this year there will be no extra money in the budget for the hospitals. Her reaction to the problems is that “this is what I as a minister gave you, and if you spend more, well, then that’s a problem you will have to deal with yourself”. Here is an article explaining the background for today’s news-story with me as an exponent for the group that in the end will suffer because politicians and hospital-bureaucrats are not able to cooperate; the patients. Instead they are busy playing the blame-game… Shame on them! (OK, OK; it’s very simplified, and probably not an accurate picture, but it’s my opinion right now.)

It’s getting late, so I don’t have time to give you the whole picture now, but here’s a list of English news-sites about Norway

Posted in hearing | 6 Comments »